{"id":17549,"date":"2025-07-10T18:55:33","date_gmt":"2025-07-10T16:55:33","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=17549"},"modified":"2025-09-02T19:01:55","modified_gmt":"2025-09-02T17:01:55","slug":"actividades-de-ern-skin","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/","title":{"rendered":"Actividades de ERN Skin"},"content":{"rendered":"

\"\"<\/a><\/p>\n

16 de enero de 2025: <\/em>Comit\u00e9 Ejecutivo (en l\u00ednea)<\/strong><\/p>\n

Esta reuni\u00f3n anual destaca los principales objetivos y proyectos para los pr\u00f3ximos a\u00f1os.<\/p>\n

\"\"<\/a><\/p>\n

2 y 3 de julio de 2025<\/em> : Jornadas Cient\u00edficas<\/strong> (en Par\u00eds).<\/p>\n

\"\"<\/a> \"\"<\/a><\/p>\n

\"\"<\/a> \"\"<\/a><\/p>\n

Las presentaciones de las \u00faltimas investigaciones por patolog\u00eda, casos cl\u00ednicos y la puesta en valor de j\u00f3venes investigadores permitieron estar al d\u00eda de los trabajos y proyectos realizados dentro de nuestra red europea.<\/p>\n

\"\"<\/a> \"\"<\/a><\/p>\n

Tambi\u00e9n se destac\u00f3 el trabajo realizado por los representantes de los pacientes con la presentaci\u00f3n por parte de Marie-Claude Boiteux del art\u00edculo \u00abEmbarazo y planificaci\u00f3n familiar en enfermedades raras-Encuesta de profesionales de la salud\u00bb (ver los detalles de este estudio)\u00a0<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

16 de enero de 2025: Comit\u00e9 Ejecutivo (en l\u00ednea) Esta reuni\u00f3n anual destaca los principales objetivos y proyectos para los pr\u00f3ximos a\u00f1os. 2 y 3 de julio de 2025 : Jornadas Cient\u00edficas (en Par\u00eds). Las presentaciones de las \u00faltimas investigaciones por patolog\u00eda, casos cl\u00ednicos y la puesta en valor de j\u00f3venes investigadores permitieron estar al […]<\/p>\n","protected":false},"author":2,"featured_media":17510,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[77,83,82,74,79,76],"tags":[],"class_list":["post-17549","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-encuentros-acontecimientos-y-manifestaciones","category-eventos-proximos","category-fotos","category-investigacion","category-investigacion-medicina-genetica","category-noticias"],"yoast_head":"\nActividades de ERN Skin - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Actividades de ERN Skin - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"16 de enero de 2025: Comit\u00e9 Ejecutivo (en l\u00ednea) Esta reuni\u00f3n anual destaca los principales objetivos y proyectos para los pr\u00f3ximos a\u00f1os. 2 y 3 de julio de 2025 : Jornadas Cient\u00edficas (en Par\u00eds). Las presentaciones de las \u00faltimas investigaciones por patolog\u00eda, casos cl\u00ednicos y la puesta en valor de j\u00f3venes investigadores permitieron estar al […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-07-10T16:55:33+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-09-02T17:01:55+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2025\/09\/ERN-Skin-2025-affiche-773x1030.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"773\" \/>\n\t<meta property=\"og:image:height\" content=\"1030\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Marie-Claude\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Marie-Claude\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/\"},\"author\":{\"name\":\"Marie-Claude\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\"},\"headline\":\"Actividades de ERN Skin\",\"datePublished\":\"2025-07-10T16:55:33+00:00\",\"dateModified\":\"2025-09-02T17:01:55+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/\"},\"wordCount\":119,\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"articleSection\":[\"Encuentros, Acontecimientos y Manifestaciones\",\"eventos pr\u00f3ximos\",\"fotos\",\"Investigaci\u00f3n\",\"Investigaci\u00f3n- Medicina - Gen\u00e9tica\",\"Noticias\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/\",\"url\":\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/\",\"name\":\"Actividades de ERN Skin - CUTIS LAXA INTERNATIONALE\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#website\"},\"datePublished\":\"2025-07-10T16:55:33+00:00\",\"dateModified\":\"2025-09-02T17:01:55+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.cutislaxa.org\/es\/bienvenida\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Actividades de ERN Skin\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.cutislaxa.org\/#website\",\"url\":\"https:\/\/www.cutislaxa.org\/\",\"name\":\"CUTIS LAXA INTERNATIONALE\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.cutislaxa.org\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\",\"name\":\"Cutis Laxa Internationale\",\"url\":\"https:\/\/www.cutislaxa.org\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png\",\"contentUrl\":\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png\",\"width\":417,\"height\":120,\"caption\":\"Cutis Laxa Internationale\"},\"image\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\",\"name\":\"Marie-Claude\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g\",\"caption\":\"Marie-Claude\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Actividades de ERN Skin - CUTIS LAXA INTERNATIONALE","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/","og_locale":"es_ES","og_type":"article","og_title":"Actividades de ERN Skin - CUTIS LAXA INTERNATIONALE","og_description":"16 de enero de 2025: Comit\u00e9 Ejecutivo (en l\u00ednea) Esta reuni\u00f3n anual destaca los principales objetivos y proyectos para los pr\u00f3ximos a\u00f1os. 2 y 3 de julio de 2025 : Jornadas Cient\u00edficas (en Par\u00eds). Las presentaciones de las \u00faltimas investigaciones por patolog\u00eda, casos cl\u00ednicos y la puesta en valor de j\u00f3venes investigadores permitieron estar al […]","og_url":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/","og_site_name":"CUTIS LAXA INTERNATIONALE","article_publisher":"https:\/\/www.facebook.com\/CutisLaxaAssociation\/","article_published_time":"2025-07-10T16:55:33+00:00","article_modified_time":"2025-09-02T17:01:55+00:00","og_image":[{"width":773,"height":1030,"url":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2025\/09\/ERN-Skin-2025-affiche-773x1030.jpg","type":"image\/jpeg"}],"author":"Marie-Claude","twitter_card":"summary_large_image","twitter_misc":{"Escrito por":"Marie-Claude","Tiempo de lectura":"3 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/#article","isPartOf":{"@id":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/"},"author":{"name":"Marie-Claude","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045"},"headline":"Actividades de ERN Skin","datePublished":"2025-07-10T16:55:33+00:00","dateModified":"2025-09-02T17:01:55+00:00","mainEntityOfPage":{"@id":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/"},"wordCount":119,"publisher":{"@id":"https:\/\/www.cutislaxa.org\/#organization"},"articleSection":["Encuentros, Acontecimientos y Manifestaciones","eventos pr\u00f3ximos","fotos","Investigaci\u00f3n","Investigaci\u00f3n- Medicina - Gen\u00e9tica","Noticias"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/","url":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/","name":"Actividades de ERN Skin - CUTIS LAXA INTERNATIONALE","isPartOf":{"@id":"https:\/\/www.cutislaxa.org\/#website"},"datePublished":"2025-07-10T16:55:33+00:00","dateModified":"2025-09-02T17:01:55+00:00","breadcrumb":{"@id":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/www.cutislaxa.org\/es\/actividades-de-ern-skin\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.cutislaxa.org\/es\/bienvenida\/"},{"@type":"ListItem","position":2,"name":"Actividades de ERN Skin"}]},{"@type":"WebSite","@id":"https:\/\/www.cutislaxa.org\/#website","url":"https:\/\/www.cutislaxa.org\/","name":"CUTIS LAXA INTERNATIONALE","description":"","publisher":{"@id":"https:\/\/www.cutislaxa.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.cutislaxa.org\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/www.cutislaxa.org\/#organization","name":"Cutis Laxa Internationale","url":"https:\/\/www.cutislaxa.org\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/","url":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png","contentUrl":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png","width":417,"height":120,"caption":"Cutis Laxa Internationale"},"image":{"@id":"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/CutisLaxaAssociation\/"]},{"@type":"Person","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045","name":"Marie-Claude","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g","caption":"Marie-Claude"}}]}},"_links":{"self":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts\/17549","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/comments?post=17549"}],"version-history":[{"count":2,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts\/17549\/revisions"}],"predecessor-version":[{"id":17552,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts\/17549\/revisions\/17552"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/media\/17510"}],"wp:attachment":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/media?parent=17549"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/categories?post=17549"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/tags?post=17549"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}