{"id":16638,"date":"2024-06-30T18:39:50","date_gmt":"2024-06-30T16:39:50","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=16638"},"modified":"2024-09-18T18:47:33","modified_gmt":"2024-09-18T16:47:33","slug":"congreso-mundial-de-las-enfermedades-raras-de-la-piel-wcrsd","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/congreso-mundial-de-las-enfermedades-raras-de-la-piel-wcrsd\/","title":{"rendered":"Congreso Mundial de las Enfermedades Raras de la Piel (WCRSD)"},"content":{"rendered":"

El evento m\u00e1s importante para las enfermedades raras de la piel se celebr\u00f3 en Par\u00eds del 12 al 14 de junio<\/strong> 2024.<\/strong><\/p>\n

El Congreso Mundial de las Enfermedades Raras de la Piel (WCRSD)<\/strong> reuni\u00f3 a m\u00e9dicos, investigadores, pacientes e industriales<\/p>\n

\"\"<\/p>\n

El punto de vista del paciente era el n\u00facleo de los intereses comunes con una sesi\u00f3n plenaria organizada por los pacientes que atrajo a m\u00e1s de 150 participantes.<\/p>\n

\"\"<\/p>\n

En esta sesi\u00f3n se dio la palabra a representantes de pacientes de Am\u00e9rica del Sur, \u00c1frica, Nepal y Filipinas.<\/p>\n

\"\" \"\"<\/p>\n

En otras dos sesiones se prest\u00f3 gran atenci\u00f3n a la intervenci\u00f3n de los pacientes. Una de ellas se dedic\u00f3 a la educaci\u00f3n terap\u00e9utica del paciente<\/p>\n

\"\" \"\"<\/p>\n

y la otra al futuro y c\u00f3mo avanzar mejor todos juntos para mejorar el diagn\u00f3stico y los tratamientos<\/p>\n

Fueron tres d\u00edas intensos de intercambios, discusiones y proyectos futuros para el bienestar de los enfermos<\/p>\n

\"\" \"\"<\/p>\n

\"\" \"\"<\/p>\n

\"\" \"\"<\/p>\n","protected":false},"excerpt":{"rendered":"

El evento m\u00e1s importante para las enfermedades raras de la piel se celebr\u00f3 en Par\u00eds del 12 al 14 de junio 2024. El Congreso Mundial de las Enfermedades Raras de la Piel (WCRSD) reuni\u00f3 a m\u00e9dicos, investigadores, pacientes e industriales El punto de vista del paciente era el n\u00facleo de los intereses comunes con una […]<\/p>\n","protected":false},"author":2,"featured_media":16598,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[77,82,79,80,76],"tags":[],"class_list":["post-16638","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-encuentros-acontecimientos-y-manifestaciones","category-fotos","category-investigacion-medicina-genetica","category-legislacion-sociedad","category-noticias"],"yoast_head":"\nCongreso Mundial de las Enfermedades Raras de la Piel (WCRSD) - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/es\/congreso-mundial-de-las-enfermedades-raras-de-la-piel-wcrsd\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Congreso Mundial de las Enfermedades Raras de la Piel (WCRSD) - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"El evento m\u00e1s importante para las enfermedades raras de la piel se celebr\u00f3 en Par\u00eds del 12 al 14 de junio 2024. El Congreso Mundial de las Enfermedades Raras de la Piel (WCRSD) reuni\u00f3 a m\u00e9dicos, investigadores, pacientes e industriales El punto de vista del paciente era el n\u00facleo de los intereses comunes con una […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/es\/congreso-mundial-de-las-enfermedades-raras-de-la-piel-wcrsd\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-06-30T16:39:50+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-09-18T16:47:33+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2024\/09\/IMG_20240613_152039-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1678\" \/>\n\t<meta property=\"og:image:height\" content=\"2293\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Marie-Claude\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Marie-Claude\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/congreso-mundial-de-las-enfermedades-raras-de-la-piel-wcrsd\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/congreso-mundial-de-las-enfermedades-raras-de-la-piel-wcrsd\/\"},\"author\":{\"name\":\"Marie-Claude\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\"},\"headline\":\"Congreso Mundial de las Enfermedades Raras de la Piel (WCRSD)\",\"datePublished\":\"2024-06-30T16:39:50+00:00\",\"dateModified\":\"2024-09-18T16:47:33+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/congreso-mundial-de-las-enfermedades-raras-de-la-piel-wcrsd\/\"},\"wordCount\":167,\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"articleSection\":[\"Encuentros, Acontecimientos y Manifestaciones\",\"fotos\",\"Investigaci\u00f3n- Medicina - 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