{"id":16584,"date":"2024-05-31T17:48:24","date_gmt":"2024-05-31T15:48:24","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=16584"},"modified":"2024-09-18T17:53:21","modified_gmt":"2024-09-18T15:53:21","slug":"llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/","title":{"rendered":"Llevar la voz de los enfermos de la piel a la OMS"},"content":{"rendered":"

En Ginebra\u00a0<\/strong>,<\/p>\n

El 29 de mayo<\/strong>\u00a0se organizaron dos actos con\u00a0el\u00a0fin\u00a0de\u00a0hacer o\u00edr la voz de las enfermedades raras y dermatol\u00f3gicas<\/p>\n

en la OMS con\u00a0ocasi\u00f3n\u00a0de la Asamblea Mundial de la Salud.<\/strong><\/p>\n

 <\/p>\n

\"\" \"\"
\n<\/strong><\/p>\n

Globalskin (IADPO)<\/strong> ten\u00eda como tema \u00abLas enfermedades de la piel, una prioridad mundial de salud p\u00fablica – No hay cobertura universal de salud sin la salud de la piel\u00bb.<\/p>\n

\"\"<\/p>\n

\"\"<\/p>\n

En cuanto a Enfermedades Raras Internacional (RDI)<\/strong>, la importancia de invertir en las enfermedades raras ha sido el tema central de los debates con el objetivo final de la edici\u00f3n de una resoluci\u00f3n sobre las enfermedades raras por parte de la Asamblea Mundial de la Salud en 2025. Se ha dado un primer paso con la aceptaci\u00f3n oficial de RDI como interlocutor de la Organizaci\u00f3n Mundial de la Salud (OMS)<\/p>\n","protected":false},"excerpt":{"rendered":"

En Ginebra\u00a0, El 29 de mayo\u00a0se organizaron dos actos con\u00a0el\u00a0fin\u00a0de\u00a0hacer o\u00edr la voz de las enfermedades raras y dermatol\u00f3gicas en la OMS con\u00a0ocasi\u00f3n\u00a0de la Asamblea Mundial de la Salud.   Globalskin (IADPO) ten\u00eda como tema \u00abLas enfermedades de la piel, una prioridad mundial de salud p\u00fablica – No hay cobertura universal de salud sin la […]<\/p>\n","protected":false},"author":2,"featured_media":16570,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[77,82,80,76],"tags":[],"class_list":["post-16584","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-encuentros-acontecimientos-y-manifestaciones","category-fotos","category-legislacion-sociedad","category-noticias"],"yoast_head":"\nLlevar la voz de los enfermos de la piel a la OMS - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Llevar la voz de los enfermos de la piel a la OMS - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"En Ginebra\u00a0, El 29 de mayo\u00a0se organizaron dos actos con\u00a0el\u00a0fin\u00a0de\u00a0hacer o\u00edr la voz de las enfermedades raras y dermatol\u00f3gicas en la OMS con\u00a0ocasi\u00f3n\u00a0de la Asamblea Mundial de la Salud.   Globalskin (IADPO) ten\u00eda como tema \u00abLas enfermedades de la piel, una prioridad mundial de salud p\u00fablica – No hay cobertura universal de salud sin la […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-05-31T15:48:24+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-09-18T15:53:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2024\/09\/447056884_858299853007881_5799537356715025279_n.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1966\" \/>\n\t<meta property=\"og:image:height\" content=\"1077\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Marie-Claude\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Marie-Claude\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/\"},\"author\":{\"name\":\"Marie-Claude\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\"},\"headline\":\"Llevar la voz de los enfermos de la piel a la OMS\",\"datePublished\":\"2024-05-31T15:48:24+00:00\",\"dateModified\":\"2024-09-18T15:53:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/\"},\"wordCount\":155,\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"articleSection\":[\"Encuentros, Acontecimientos y Manifestaciones\",\"fotos\",\"Legislaci\u00f3n - Sociedad\",\"Noticias\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/\",\"url\":\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/\",\"name\":\"Llevar la voz de los enfermos de la piel a la OMS - CUTIS LAXA INTERNATIONALE\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#website\"},\"datePublished\":\"2024-05-31T15:48:24+00:00\",\"dateModified\":\"2024-09-18T15:53:21+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.cutislaxa.org\/es\/bienvenida\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Llevar la voz de los enfermos de la piel a la OMS\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.cutislaxa.org\/#website\",\"url\":\"https:\/\/www.cutislaxa.org\/\",\"name\":\"CUTIS LAXA INTERNATIONALE\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.cutislaxa.org\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\",\"name\":\"Cutis Laxa Internationale\",\"url\":\"https:\/\/www.cutislaxa.org\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png\",\"contentUrl\":\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png\",\"width\":417,\"height\":120,\"caption\":\"Cutis Laxa Internationale\"},\"image\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\",\"name\":\"Marie-Claude\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g\",\"caption\":\"Marie-Claude\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Llevar la voz de los enfermos de la piel a la OMS - CUTIS LAXA INTERNATIONALE","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/","og_locale":"es_ES","og_type":"article","og_title":"Llevar la voz de los enfermos de la piel a la OMS - CUTIS LAXA INTERNATIONALE","og_description":"En Ginebra\u00a0, El 29 de mayo\u00a0se organizaron dos actos con\u00a0el\u00a0fin\u00a0de\u00a0hacer o\u00edr la voz de las enfermedades raras y dermatol\u00f3gicas en la OMS con\u00a0ocasi\u00f3n\u00a0de la Asamblea Mundial de la Salud.   Globalskin (IADPO) ten\u00eda como tema \u00abLas enfermedades de la piel, una prioridad mundial de salud p\u00fablica – No hay cobertura universal de salud sin la […]","og_url":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/","og_site_name":"CUTIS LAXA INTERNATIONALE","article_publisher":"https:\/\/www.facebook.com\/CutisLaxaAssociation\/","article_published_time":"2024-05-31T15:48:24+00:00","article_modified_time":"2024-09-18T15:53:21+00:00","og_image":[{"width":1966,"height":1077,"url":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2024\/09\/447056884_858299853007881_5799537356715025279_n.jpg","type":"image\/jpeg"}],"author":"Marie-Claude","twitter_card":"summary_large_image","twitter_misc":{"Escrito por":"Marie-Claude","Tiempo de lectura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/#article","isPartOf":{"@id":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/"},"author":{"name":"Marie-Claude","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045"},"headline":"Llevar la voz de los enfermos de la piel a la OMS","datePublished":"2024-05-31T15:48:24+00:00","dateModified":"2024-09-18T15:53:21+00:00","mainEntityOfPage":{"@id":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/"},"wordCount":155,"publisher":{"@id":"https:\/\/www.cutislaxa.org\/#organization"},"articleSection":["Encuentros, Acontecimientos y Manifestaciones","fotos","Legislaci\u00f3n - Sociedad","Noticias"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/","url":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/","name":"Llevar la voz de los enfermos de la piel a la OMS - CUTIS LAXA INTERNATIONALE","isPartOf":{"@id":"https:\/\/www.cutislaxa.org\/#website"},"datePublished":"2024-05-31T15:48:24+00:00","dateModified":"2024-09-18T15:53:21+00:00","breadcrumb":{"@id":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/www.cutislaxa.org\/es\/llevar-la-voz-de-los-enfermos-de-la-piel-a-la-oms\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.cutislaxa.org\/es\/bienvenida\/"},{"@type":"ListItem","position":2,"name":"Llevar la voz de los enfermos de la piel a la OMS"}]},{"@type":"WebSite","@id":"https:\/\/www.cutislaxa.org\/#website","url":"https:\/\/www.cutislaxa.org\/","name":"CUTIS LAXA INTERNATIONALE","description":"","publisher":{"@id":"https:\/\/www.cutislaxa.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.cutislaxa.org\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/www.cutislaxa.org\/#organization","name":"Cutis Laxa Internationale","url":"https:\/\/www.cutislaxa.org\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/","url":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png","contentUrl":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png","width":417,"height":120,"caption":"Cutis Laxa Internationale"},"image":{"@id":"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/CutisLaxaAssociation\/"]},{"@type":"Person","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045","name":"Marie-Claude","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/f56014046df7c736afcf45ec2d3ba3e6?s=96&d=mm&r=g","caption":"Marie-Claude"}}]}},"_links":{"self":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts\/16584","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/comments?post=16584"}],"version-history":[{"count":2,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts\/16584\/revisions"}],"predecessor-version":[{"id":16586,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/posts\/16584\/revisions\/16586"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/media\/16570"}],"wp:attachment":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/media?parent=16584"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/categories?post=16584"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/tags?post=16584"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}