{"id":10200,"date":"2020-12-22T16:14:00","date_gmt":"2020-12-22T15:14:00","guid":{"rendered":"http:\/\/www.cutislaxa.org\/?p=10200"},"modified":"2020-12-22T16:14:00","modified_gmt":"2020-12-22T15:14:00","slug":"hace-20-anos","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/hace-20-anos\/","title":{"rendered":"HACE 20 A\u00d1OS…"},"content":{"rendered":"
\n

C\u00e9cile fue diagnosticada en 1992.<\/span><\/p>\n

Ocho a\u00f1os m\u00e1s tarde, apareci\u00f3 por primera vez en las pantallas de televisi\u00f3n.<\/span><\/p>\n

El 11 de noviembre de 2001 fundamos Cutis Laxa Internacional.<\/span> Pero no hab\u00eda programa de investigaci\u00f3n.<\/span> Conoc\u00edamos a 9 enfermos.<\/span><\/p>\n

Un mes m\u00e1s tarde lanzamos una llamada a las pantallas de televisi\u00f3n durante el Telet\u00f3n.<\/span> Se necesitaba una d\u00e9cima persona enferma para iniciar un programa de investigaci\u00f3n.<\/span><\/p>\n

Annie Moissin, entonces responsable de las relaciones con los enfermos por las enfermedades hu\u00e9rfanas, escuch\u00f3 esta llamada.<\/span> Aqu\u00ed<\/a> (en frances) dice lo que pas\u00f3 despu\u00e9s.<\/span><\/p>\n

Gracias a ti, Annie,<\/span><\/p>\n

\n
\n

Gracias a Solhand, de la cual t\u00fa eres hoy la Presidenta,<\/span><\/p>\n

S\u00f3lo uno no puede hacer nada, muchos son m\u00e1s fuertes y van m\u00e1s all\u00e1.<\/span><\/p>\n

Marie-Claude Boiteux<\/span><\/p>\n

Presidenta de Cutis Laxa Internacional, madre de C\u00e9cile<\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n

<\/div>\n
<\/div>\n","protected":false},"excerpt":{"rendered":"

C\u00e9cile fue diagnosticada en 1992. Ocho a\u00f1os m\u00e1s tarde, apareci\u00f3 por primera vez en las pantallas de televisi\u00f3n. El 11 de noviembre de 2001 fundamos Cutis Laxa Internacional. Pero no hab\u00eda programa de investigaci\u00f3n. Conoc\u00edamos a 9 enfermos. Un mes m\u00e1s tarde lanzamos una llamada a las pantallas de televisi\u00f3n durante el Telet\u00f3n. Se necesitaba […]<\/p>\n","protected":false},"author":2,"featured_media":10194,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[77,81,76,78],"tags":[],"class_list":["post-10200","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-encuentros-acontecimientos-y-manifestaciones","category-medios-de-comunicacion","category-noticias","category-nuevos-contactos-nuevas-familias"],"yoast_head":"\nHACE 20 A\u00d1OS... - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/20-years-ago\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"HACE 20 A\u00d1OS... - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"C\u00e9cile fue diagnosticada en 1992. Ocho a\u00f1os m\u00e1s tarde, apareci\u00f3 por primera vez en las pantallas de televisi\u00f3n. El 11 de noviembre de 2001 fundamos Cutis Laxa Internacional. Pero no hab\u00eda programa de investigaci\u00f3n. Conoc\u00edamos a 9 enfermos. Un mes m\u00e1s tarde lanzamos una llamada a las pantallas de televisi\u00f3n durante el Telet\u00f3n. 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