{"id":4359,"date":"2018-02-16T17:17:03","date_gmt":"2018-02-16T17:17:03","guid":{"rendered":"http:\/\/www.cutislaxa.org\/donation-page\/"},"modified":"2024-12-11T11:54:46","modified_gmt":"2024-12-11T10:54:46","slug":"donation-page","status":"publish","type":"page","link":"https:\/\/www.cutislaxa.org\/es\/donation-page\/","title":{"rendered":"Donation Page"},"content":{"rendered":"
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<\/div>

HACERSE SOCIO<\/b><\/h1>
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Nuestra Asociaci\u00f3n naci\u00f3 el 11 de noviembre de 2001. Somos un peque\u00f1o grupo de familias diseminadas a los cuatro rincones del globo y concernidas por esta enfermedad gen\u00e9tica rara. Adem\u00e1s de la rotura del aislamiento de los enfermos, la informaci\u00f3n de los medios m\u00e9dicos para sensibilizarlos a esta enfermedad mal conocida es uno de nuestros principales objetivos. Es dif\u00edcilmente aceptable comprobar que en nuestra \u00e9poca de las personas enfermas no se encargan por ciertos m\u00e9dicos por desconocimiento simple de su s\u00edndrome y que de estos hechos numerosos son los que, o muy tarde, no han diagnosticado.<\/p>\n

Hoy, gracias a la presencia de C\u00e9cile en diferentes emisiones de televisi\u00f3n (Telet\u00f3n, \u00bb esto se discute \u00ab, \u00abreportajes\u2026\u00bb) y a nuestra p\u00e1gina internet pudimos conocernos, reagruparnos, cambiar nuestras l\u00e1grimas y nuestras risas, romper la soledad en la cual cada uno viv\u00eda, pero tambi\u00e9n y sobre todo continuar ayudando a la investigaci\u00f3n. Mucho trabajo ya ha sido hecho, pero muchos todav\u00eda nos espera\u2026.<\/p>\n

LE NECESITAMOS.<\/strong><\/h5>\n

Nos comprometemos de tenerle informados sobre todo lo que interesa personalmente o de lejos a CUTIS LAXA.<\/p>\n<\/div><\/section><\/p><\/div>

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Usted desea ayudarnos:<\/p>\n

cumpla el formulario m\u00e1s abajo y solicite nuestros datos bancarios (IBAN) por correo electr\u00f3nico a mcjlboiteux@aol.com<\/span><\/p>\n

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Tuvimos que retirar nuestros datos bancarios de nuestro sitio debido a actos malintencionados en nuestra cuenta bancaria.<\/span><\/p>\n

Sin embargo, puede inscribirse en l\u00ednea a trav\u00e9s de nuestra p\u00e1gina del sitio HelloAsso utilizando el enlace siguiente (en Franc\u00e8s)<\/p>\n

Inscribirse via HelloAsso<\/a><\/p>\n

\u00a0<\/span><\/p>\n<\/div>\n<\/div><\/section>
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<\/p>\n

QUIERO AYUDAR A CUTIS LAXA INTERNACIONAL Y:<\/strong><\/h3>\n

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CUTIS LAXA INTERNATIONALE
\n138 Impasse Champs Gervais
\nF-74890 – Bons en Chablais
\nFrance<\/p>\n

IBAN : FR76 1240 6001 2400 1806 3980 297
\nBIC : AGRIFRPP824<\/p>\n<\/div><\/section>
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Se le enviar\u00e1 un recibo fiscal por el importe pagado para que pueda desgravar este importe en la declaraci\u00f3n de la renta.<\/p>\n

Las informaciones recogidas aqu\u00ed son necesarias para la gesti\u00f3n administrativa de su adhesi\u00f3n y\\o don. Son objeto de una conservaci\u00f3n y de un tratamiento inform\u00e1tico y \u00fanicamente destinadas a la secretariado de Cutis Laxa Internationale. En aplicaci\u00f3n de los art\u00edculos 39 y los siguientes de la ley modificada del 6 de enero de 1978) usted dispone del derecho de acceso y de rectificaci\u00f3n a los datos que nos ha dado para lo cual debe dirigirse directamente a la sede de nuestra Asociaci\u00f3n (direcci\u00f3n mencionada m\u00e1s arriba). Usted tambi\u00e9n puede, y en cualquier momento, desabonarse del env\u00edo de nuestra electr\u00f3nica newsletter envi\u00e1ndonos un correo electr\u00f3nico con la menci\u00f3n \u00abdesabonarse\u00bb a: mcjlboiteux@aol.com<\/a><\/p>\n<\/div><\/section><\/p><\/div>

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