{"id":4156,"date":"2019-01-18T15:48:02","date_gmt":"2019-01-18T15:48:02","guid":{"rendered":"http:\/\/www.cutislaxa.org\/acerca-de-nosotros\/association-links\/"},"modified":"2026-03-23T15:27:08","modified_gmt":"2026-03-23T14:27:08","slug":"association-links","status":"publish","type":"page","link":"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/","title":{"rendered":"Asociaciones y Enlaces"},"content":{"rendered":"<div id='av_section_1'  class='avia-section main_color avia-section-large avia-no-border-styling  avia-bg-style-scroll  avia-builder-el-0  avia-builder-el-no-sibling   container_wrap fullsize' style=' '  ><div class='container' ><main  role=\"main\" itemprop=\"mainContentOfPage\"  class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-4156'><div class='entry-content-wrapper clearfix'>\n<div  style='padding-bottom:30px; font-size:70px;' class='av-special-heading av-special-heading-h1  blockquote modern-quote  avia-builder-el-1  el_before_av_one_full  avia-builder-el-first  av-inherit-size '><h1 class='av-special-heading-tag '  itemprop=\"headline\"  >Asociaciones y Enlaces<\/h1><div class='special-heading-border'><div class='special-heading-inner-border' ><\/div><\/div><\/div>\n<div class=\"flex_column av_one_full  flex_column_div av-zero-column-padding first  avia-builder-el-2  el_after_av_heading  avia-builder-el-last  \" style='border-radius:0px; '><p><section class=\"av_textblock_section \"  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock  '  style='font-size:18px; '  itemprop=\"text\" ><p>El problema m\u00e1s grueso encontrado por las Asociaciones de Enfermedades Raras consiste en pocos medios de los que disponen. Poner en com\u00fan estos medios permite optimizarlos. Somos en relaci\u00f3n con, o nos adherimos a Asociaciones, a Organismos. Pero tambi\u00e9n hay un cierto n\u00famero de sitios \u00abamigos\u201d que hablan de nosotros:<\/p>\n<h4><\/h4>\n<\/div><\/section><br \/>\n<section class=\"av_textblock_section \"  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock  '   itemprop=\"text\" ><h1><\/h1>\n<p><strong>EN FRANCIA<\/strong><\/p>\n<ul>\n<li><strong>Alianza de Enfermedades Raras:\u00a0<\/strong> <a href=\"https:\/\/www.alliance-maladies-rares.org\">www.alliance-maladies-rares.org<\/a>\u00a0\u00a0 e-mail\u00a0: <a href=\"mailto:contact@maladiesrares.org\">contact@maladiesrares.org \u00a0<\/a>\u00a0 \u00a0Tel\u00a0: (33) (0)1 56 53 53 40<\/li>\n<li><strong>Fundaci\u00f3n Ren\u00e9 Touraine :<\/strong> <a href=\"https:\/\/fondation-r-touraine.org\/\">https:\/\/fondation-r-touraine.org\/<\/a><\/li>\n<li><strong>France ADOT<\/strong> (Asociaci\u00f3n Francesa de Donaci\u00f3n de \u00d3rganos) :\u00a0 <a href=\"http:\/\/www.france-adot.org\">www.france-adot.org<\/a><\/li>\n<li><strong>F\u00e9d\u00e9ration Fran\u00e7aise de la Peau (FFP) : <\/strong><a href=\"https:\/\/francepeau.com\/\">https:\/\/francepeau.com\/<\/a><\/li>\n<li><strong>Handicap.fr :<\/strong>\u00a0\u00a0<a href=\"http:\/\/www.handicap.fr\">www.handicap.fr<\/a> email : <a href=\"mailto:info@handicap.fr\">info@handicap.fr\u00a0<\/a>\u00a0\u00a0&#8211;<\/li>\n<li><strong>Maladies Rares Info Services\u00a0:\u00a0<\/strong>(lEscucha e informaci\u00f3n sobre enfermedades raras)\u00a0 \u00a0 Tel :\u00a0 +33 156 538 136\u00a0 &#8211; <a href=\"https:\/\/www.maladiesraresinfo.org\">https:\/\/www.maladiesraresinfo.org<\/a> &#8211; e-mail : <a href=\"https:\/\/maladiesraresinfo.org\/nous-contacter.html\">https:\/\/maladiesraresinfo.org\/nous-contacter.html\u00a0<\/a><\/li>\n<li><strong>Orphanet\u00a0:<\/strong>\u00a0 \u00a0<a href=\"https:\/\/www.orpha.net\">https:\/\/www.orpha.net\u00a0<\/a>\u00a0 e-mail : <a href=\"mailto:contact.orphanet@inserm.fr\">contact.orphanet@inserm.fr\u00a0<\/a> <a href=\"https:\/\/www.orpha.net\/en\/institutions\/get-in-touch\">https:\/\/www.orpha.net\/en\/institutions\/get-in-touch<\/a><\/li>\n<li><strong>Enfermedades dermatol\u00f3gicas raras\u00a0(FIMARAD) :\u00a0<\/strong>&#8211; <a href=\"https:\/\/fimarad.org\/\">https:\/\/fimarad.org\/<\/a>\u00a0 \u00a0<a href=\"mailto:contact@fimarad.org\"> Email : contact@fimarad.org <\/a>\u00a0\u00a0&#8211; T\u00e9l. :+33 1 44 49 25 82\u00a0 -Necker University Hospital &#8211; 149 rue de S\u00e8vres &#8211; 75015 Paris Cedex<\/li>\n<li><strong>Solidarit\u00e9 Handicap \u00abautour des maladies rares\u00bb\u00a0 : <\/strong><a href=\"https:\/\/www.solhand.org\">https:\/\/www.solhand.org<\/a><\/li>\n<\/ul>\n<p><strong>EN EUROPA<\/strong><\/p>\n<ul>\n<li><strong>ERN-Skin, Red Europea de Referencia de la Piel: <\/strong><a href=\"https:\/\/ern-skin.eu\/\">https:\/\/ern-skin.eu\/<\/a><\/li>\n<li><strong>Eurordis : <\/strong>\u00a0<a href=\"http:\/\/www.eurordis.org\">www.eurordis.org<\/a>\u00a0 \u00a0e-mail : <a href=\"mailto:eurordis@eurordis.org\">eurordis@eurordis.org<\/a> \u00a096, rue Didot &#8211; 75014 PARIS\u00a0 Tel : +33 1 56 53 52 10<\/li>\n<\/ul>\n<p><strong>MUNDIAL<\/strong><\/p>\n<ul>\n<li><strong>Contacto: Fundaci\u00f3n para Familias con Ni\u00f1os con Discapacidad (UK):<\/strong> <a href=\"https:\/\/contact.org.uk\/\">https:\/\/contact.org.uk\/\u00a0<\/a><\/li>\n<li><strong>GeneticAlliance (USA):<\/strong>\u00a0 <a href=\"https:\/\/geneticalliance.org\">https:\/\/geneticalliance.org<\/a>\u00a0 e-mail : <a href=\"mailto:info@geneticalliance.org\">info@geneticalliance.org<\/a><\/li>\n<li><strong>GLOBALSKIN (Alianza Internacional de Asociaciones de Enfermedades Dermatol\u00f3gicas) : <\/strong><a href=\"https:\/\/globalskin.org\/\">https:\/\/globalskin.org\/<\/a> email : <a href=\"https:\/\/globalskin.org\/contact-us\">https:\/\/globalskin.org\/contact-us<\/a><\/li>\n<li><strong>Organizaci\u00f3n Nacional de Enfermedades Raras (NORD) (USA) :<\/strong> <a href=\"http:\/\/www.rarediseases.org\">www.rarediseases.org<\/a>\u00a0 e-mail : <a href=\"mailto:orphan@rarediseases.org\">orphan@rarediseases.org<\/a><\/li>\n<li><strong>Enfermedades Raras Internacional (RDI):<\/strong> \u00a0<a href=\"http:\/\/www.rarediseasesinternational.org\">www.rarediseasesinternational.org<\/a><\/li>\n<li><strong>ThinkGenetic\u00a0: \u00a0<\/strong><a href=\"https:\/\/thinkgenetic.org\/\"> https:\/\/thinkgenetic.org\/<\/a> email <a href=\"mailto:info@thinkgenetic.org\">info@thinkgenetic.org<\/a><\/li>\n<\/ul>\n<\/div><\/section><\/p><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":3423,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-4156","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Asociaciones y Enlaces - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Asociaciones y Enlaces - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-23T14:27:08+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/\",\"url\":\"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/\",\"name\":\"Asociaciones y Enlaces - CUTIS LAXA INTERNATIONALE\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#website\"},\"datePublished\":\"2019-01-18T15:48:02+00:00\",\"dateModified\":\"2026-03-23T14:27:08+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.cutislaxa.org\/es\/bienvenida\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Acerca de Nosotros\",\"item\":\"https:\/\/www.cutislaxa.org\/about-us\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Asociaciones y Enlaces\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.cutislaxa.org\/#website\",\"url\":\"https:\/\/www.cutislaxa.org\/\",\"name\":\"CUTIS LAXA INTERNATIONALE\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.cutislaxa.org\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\",\"name\":\"Cutis Laxa Internationale\",\"url\":\"https:\/\/www.cutislaxa.org\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png\",\"contentUrl\":\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png\",\"width\":417,\"height\":120,\"caption\":\"Cutis Laxa Internationale\"},\"image\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Asociaciones y Enlaces - CUTIS LAXA INTERNATIONALE","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/","og_locale":"es_ES","og_type":"article","og_title":"Asociaciones y Enlaces - CUTIS LAXA INTERNATIONALE","og_url":"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/","og_site_name":"CUTIS LAXA INTERNATIONALE","article_publisher":"https:\/\/www.facebook.com\/CutisLaxaAssociation\/","article_modified_time":"2026-03-23T14:27:08+00:00","twitter_card":"summary_large_image","twitter_misc":{"Tiempo de lectura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/","url":"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/","name":"Asociaciones y Enlaces - CUTIS LAXA INTERNATIONALE","isPartOf":{"@id":"https:\/\/www.cutislaxa.org\/#website"},"datePublished":"2019-01-18T15:48:02+00:00","dateModified":"2026-03-23T14:27:08+00:00","breadcrumb":{"@id":"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/www.cutislaxa.org\/es\/acerca-de-nosotros\/association-links\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.cutislaxa.org\/es\/bienvenida\/"},{"@type":"ListItem","position":2,"name":"Acerca de Nosotros","item":"https:\/\/www.cutislaxa.org\/about-us\/"},{"@type":"ListItem","position":3,"name":"Asociaciones y Enlaces"}]},{"@type":"WebSite","@id":"https:\/\/www.cutislaxa.org\/#website","url":"https:\/\/www.cutislaxa.org\/","name":"CUTIS LAXA INTERNATIONALE","description":"","publisher":{"@id":"https:\/\/www.cutislaxa.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.cutislaxa.org\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/www.cutislaxa.org\/#organization","name":"Cutis Laxa Internationale","url":"https:\/\/www.cutislaxa.org\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/","url":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png","contentUrl":"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2017\/12\/NEW-LOGO-CLI-4.png","width":417,"height":120,"caption":"Cutis Laxa Internationale"},"image":{"@id":"https:\/\/www.cutislaxa.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/CutisLaxaAssociation\/"]}]}},"_links":{"self":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/pages\/4156","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/comments?post=4156"}],"version-history":[{"count":10,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/pages\/4156\/revisions"}],"predecessor-version":[{"id":19358,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/pages\/4156\/revisions\/19358"}],"up":[{"embeddable":true,"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/pages\/3423"}],"wp:attachment":[{"href":"https:\/\/www.cutislaxa.org\/es\/wp-json\/wp\/v2\/media?parent=4156"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}