{"id":3932,"date":"2020-02-28T12:20:36","date_gmt":"2020-02-28T12:20:36","guid":{"rendered":"http:\/\/www.cutislaxa.org\/patients-worldwide\/"},"modified":"2026-03-19T17:38:21","modified_gmt":"2026-03-19T16:38:21","slug":"patients-worldwide","status":"publish","type":"page","link":"https:\/\/www.cutislaxa.org\/es\/patients-worldwide\/","title":{"rendered":"En el Mundo"},"content":{"rendered":"
\n
<\/div>

Pacientes<\/b><\/h1>
<\/div><\/div><\/div>
\n
Todos los seres humanos, dondequiera que nazcan, en cualquier pa\u00eds, en cualquier continente, est\u00e1n sometidos a las mismas leyes gen\u00e9ticas.<\/span> Incluso si nuestro c\u00f3digo gen\u00e9tico personal es \u00fanico, el Mapa del Genoma Humano es universal.<\/span>
\nCuando usted est\u00e1 preocupado por una enfermedad gen\u00e9tica rara, permanecer dentro de sus fronteras nativas puede ser sin\u00f3nimo de no ser tomado a cargo de la investigaci\u00f3n cient\u00edfica, y vivir con gran soledad.<\/span><\/div>\n

Para un ejemplo lea el Historia De Nuestra Asociaci\u00f3n<\/a><\/p>\n

\n

Establecer contactos con los enfermos y sus familias en todo el mundo permiti\u00f3 romper el aislamiento y la soledad para cada uno de nosotros. Sobre todo, los m\u00e9dicos y cient\u00edficos han entendido que una investigaci\u00f3n era posible porque hab\u00eda suficientes casos.<\/span><\/p>\n

Todos los continentes est\u00e1n representados entre nuestros miembros : Europa, Am\u00e9rica, Ocean\u00eda, Asia y \u00c1frica.<\/span><\/p>\n<\/div>\n<\/div><\/section><\/p><\/div>

<\/div>\n\n<\/div><\/div><\/main><\/div><\/div>
<\/div>
\n

En el Mundo :<\/span><\/h2>\n<\/div><\/section>\n
582<\/span><\/strong>
<\/div><\/div>\n
<\/span><\/span><\/div>\n

enfermos<\/span><\/h2>\n

(Censo de nuestra asociaci\u00f3n)<\/em><\/span><\/p>\n<\/div><\/section>\n<\/div><\/div><\/div><\/div><\/div><\/div>

\n
1<\/div>
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2<\/div>
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3<\/div>
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4<\/div>
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5<\/div>
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6<\/div>
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7<\/div>
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8<\/div>
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1
<\/div><\/div>

Am\u00e9rica Del Norte<\/span><\/strong><\/h3>\n

CANAD\u00c0<\/strong> : 20 P<\/span>acientes
\nEEUU : <\/strong>199 Pacientes
\nMEXICO : <\/strong>10 Pacientes<\/p>\n<\/div><\/div>

2
<\/div><\/div>

America del Sur<\/h3>\n

ARGENTINA : <\/strong>8 Pacientes
\nBRASIL : <\/strong>22 Pacientes
\nCHILE :\u00a0<\/strong> 1 Paciente
\nCOLOMBIA :\u00a0<\/strong> 7 Pacientes
\nCOSTA RICA :\u00a0<\/strong> 1 Paciente
\nCUBA :\u00a0<\/strong> 1 Paciente
\nEL<\/strong> ECUADOR :\u00a0<\/strong> 1 Paciente
\nLAS<\/strong> BAHAMAS :\u00a0<\/strong> 1\u00a0 Paciente
\nPANAMA :\u00a0<\/strong> 4 Pacientes
\nPERU :<\/strong> 1 Paciente
\nPORTO RICO<\/strong> :\u00a0 1 Paciente
\nRep\u00fablica Dominicana :<\/strong> 1 Paciente
\nVENEZUELA<\/strong> :\u00a0 3 Pacientes<\/p>\n<\/div><\/div>

3
<\/div><\/div>

Europa<\/h3>\n

ALEMANIA : <\/strong>15 Pacientes
\n B\u00c9LGICA : <\/strong>5 Pacientes
\n CROACIA : <\/strong>1 Paciente
\n DINAMARCA : <\/strong>3 Pacientes
\n ESLOVAQUIA : <\/strong>1 Paciente
\n ESPA\u00d1A : <\/strong>17 Pacientes
\nESTONIA :<\/strong> 1 Paciente
\n FINLANDIA : <\/strong>3 Pacientes
\n FRANCIA : <\/strong>68 Pacientes
\n GRAN BRETA\u00d1A : <\/strong>33 Pacientes
\n GRECIA : <\/strong>3 Pacientes
\n HUNGR\u00cdA : <\/strong>1 Paciente
\n IRLANDA : <\/strong>3 Pacientes
\n ITALIA : <\/strong>10 Pacientes
\n NORUEGA :<\/strong> 2 Pacientes
\n PA\u00cdSES BAJOS : <\/strong>18 Pacientes
\n POLONIA :<\/strong> 6 Pacientes
\n PORTUGAL : <\/strong>1 Paciente
\n RUMANIA : <\/strong>2 Pacientes
\n SUECIA : <\/strong>4 Pacientes
\n SUIZA : <\/strong>3 Pacientes<\/p>\n

\u00a0<\/strong><\/p>\n<\/div><\/div>

4
<\/div><\/div>

\u00c1frica<\/h3>\n

ARGELIA<\/strong> : 2 Pacientes
\nEGIPTO<\/strong> : 5 Pacientes
\nMARRUECOS<\/strong> : 3 Pacientes
\nNIGERIA :<\/strong> 1 Paciente
\nSENEGAL<\/strong> : 1 Paciente
\nSIERRA LEONE :<\/strong> 1 Paciente
\nSOUTH-AFRICA :<\/strong> 1 Paciente
\nTANZANIA<\/strong> : 1 Paciente
\nTUNEZ<\/strong> : 1 Paciente<\/p>\n<\/div><\/div>

5
<\/div><\/div>

Medio Oriente<\/h3>\n

ARABIA<\/strong> SAUDITA <\/strong>: 2 Pacientes
\nDUBAI<\/strong> : 3 Paciente
\nIRAN<\/strong> : 1 Paciente
\nIRAQ :<\/strong> 3 Pacientes
\nISRAEL :<\/strong> 3 Pacientes
\nJORDANIE :<\/strong> 3 Pacientes
\nKOWEIT :<\/strong> 1 Paciente
\nL\u00cdBANO<\/strong> : 6 Pacientes
\nPALESTINA<\/strong> :\u00a0 1 Paciente
\nSIRIA :<\/strong> 2 Pacientes
\nTURQU\u00cdA<\/strong> :\u00a0 13 Pacientes
\nYEMEN<\/strong> :\u00a0 1 Paciente<\/p>\n<\/div><\/div>

6
<\/div><\/div>

Asia<\/h3>\n

BANGLADESH<\/strong> : 2 Paciente
\nCHINA<\/strong> : 2 Pacientes
\nCOREA<\/strong> : 3 Pacientes
\nEL<\/strong> SRI LANKA<\/strong> : 2 Pacientes
\nJAP\u00d3N<\/strong> : 2 Pacientes
\nLA INDIA<\/strong> : 7 Pacientes
\nLAS FILIPINAS <\/strong>: 1 Paciente
\nMONGOLIA<\/strong> : 1 Paciente<\/p>\n<\/div><\/div>

7
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Ocean\u00eda<\/h3>\n

AUSTRALIA<\/strong> : 20 Pacientes
\nNUEVA ZELANDA <\/strong>: 2 Pacientes<\/p>\n<\/div><\/div>

8
<\/div><\/div>

Russia<\/h3>\n

3 Pacientes<\/p>\n<\/div><\/div><\/div>\n

Actualizada : 7<\/span> de Febrero 2022<\/span><\/p>\n<\/div><\/section>\n<\/div><\/div><\/div><\/div><\/div>

\n
<\/div>

Los diferentes documentos disponibles que conciernen Cutis Laxa tiene en cuenta una centena de casos descritos<\/strong> en la literatura m\u00e9dica, sin contar los que, o tarde, no han diagnosticado. Sabemos hoy que hay mucho m\u00e1s de una centena de caso. A las 4 rincones del mundo hay siempre unos enfermos que est\u00e1n solos.<\/p>\n

\u00bf Deben quedarlo?<\/p>\n

Si, al azar de su viajes, de su encuentros, usted tiene conocimiento de una persona alcanzada de Cutis Laxa, d\u00e9le nuestras se\u00f1as. Es importante para ella, es importante para nosotros, es importante para la investigaci\u00f3n, es importante para usted.<\/strong><\/p>\n<\/div><\/section><\/div>

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