Report on “Disability and rare disease: towards person centered care for Australians with rare diseases”

AUSTRALIA : Report on “Disability and rare disease: towards person centered care for Australians with rare diseases”

The recommendations of this report, commissioned by Rare Voices Australia, on behalf of partner organisations and people living with rare disease, were launched at the Parliament.

They are focused on reforms which would deliver integrated care for those with health and disability care needs, improve the understanding of rare diseases by health and disability care workers and ensure that the systems can respond to the changing needs of people with rare diseases that are complex and sometimes difficult to predict.

(© orphanews 2019.12.06)