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 Cutis Laxa

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You are concerned by Cutis Laxa (patient, patient's parents, doctor, researcher)

ask to join our  FACEBOOK Group

Your request must be accepted by the administrators Susan Meek Dickison Nuner and/or Marie-Claude Boiteux .

To ensure that you are eligible to this private group, they send you a message and a friend request to their own friends' group.

If you do not accept the friend request, the message will be put in the message box "Other"

located on top of your private messages  (Inbox    Other    More)


You are interested in Cutis Laxa, but also in everything that concerns rare diseases in general, come and like our   FACEBOOK Page


You are looking for the name and address of a doctor who knows Cutis Laxa and could answer your questions

go to the List of Doctors



5th Information Day on Cutis Laxa - Annecy (France) - 5th to 8th MAY 2016



people visited these pages since we opened the site on 24th October 2002


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Last updates !


July 2017 : Updating the number of sufferers, updating the maps,Cutis Laxa worldwide, What is Cutis Laxa  ?, Index, updating the list of doctors, Latest Newsletter CLI-News N°28, new Photos, and new articles in the Press Release

May 2017 : Updating the pages Annual Meeting 2017  and Projects 2017

January 2017 : Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, adding CLI-News N°27, new Photos and new articles in the Press Release

Août 2016 : Updating all the pages, and especially Index, Photos, Press Release, Cutis Laxa Worldwide, Newsletter CLI-News N°26 with its 2 special issues,

                    Testimonies, ......

                    Création de nouvelles pages : Scientific Talks 2016, Speakers' and participants' testimonies  Annecy 2016, photos Annecy 2016

May 2016 : Updating the pages Diary and Index, adding Annual Meeting 2016  and Projects 2016




Legal Disclaimer

All material found at this site is for educational and informative purposes only. It is not intended to substitute medical or professional services nor replace the relationship that exists between patients, their physicians and other health care providers. No action, treatment, independent entities or persons are endorsed and all information is provided without warranty. Any questions should be referred to your physicians and in particular, any changes in treatment or care should be made in conjunction with your medical team.


The update is mentionned at the end of each page.

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For any question about this site or our association, send a mail to
Version 2.06 - Last update : 1st July 2017