ERN-Skin’s aims are, among others, to improve patients’ follow-up and to help research. Within this framework, it is essential that patients, as well as doctors concerned by Cutis Laxa, help research projects. No research can be done without everyone’s involvement.
If you wish to take part in research on Cutis Laxa in Europe, please get in touch with the coordinator concerned with Cutis Laxa :
Pr Bert CALLEWAERT
Center for Medical Genetics Ghent University Hospital
De Pintelaan 185
B-9000 Gent Belgium
Knowing the disorder and its different types better, following up on patients and exploring new therapeutic path are the benefits we are all waiting for. Let us take part in their development. Let us be actors in improvements to our health.