(NGO) Committee for rare diseases in the United Nations

The first report of the Non Governmental Organisation (NGO) Committee for rare diseases in the United Nations declared that the main mission is to :

  • Bring visibility and understanding about rare diseases to the United Nations.
  • Act as an advocacy platform for the issue of rare diseases, creating a space for collaboration.
  • Collect and share accurate information about rare diseases and associated challenges.
  • Elevate rare diseases as a priority within global public health, research, medical care, social care and social integration. (© Orphanews 23 Mars 2017).

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