The National Rare Diseases Registry System of China (NRDRS)

CHINA recently launched its first nation-wide patient registry, the National Rare Diseases Registry System of China (NRDRS). It aims to promote the rare diseases research. Lead by Pr Zhang Shuyang from Pekin Union Medical College Hospital (PUMCH), this registry incorporates resources from 20 leading medical institutes of China and provides a data system for more than 50 rare diseases and disease groups. (© Orphanews 04 Février 2017)

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