Welcome

NEW CONTACTS, FAMILIES’ NEWS

Since last July, Mina (Irak), Aimee (USA), Gül (Turquie), Rhett (USA), Benjamin (USA), Linda (USA), Graça Maria (Brésil), Raghad (Syrie/Turquie), Françoise (France), Mara (Roumanie), Heather (USA) and Daniel (Italy) joined us.

That is now 385 patients spread over 59 countries across 5 continents, suffering from Cutis Laxa and members of Cutis Laxa Internationale.

Welcome to all of you, to our big Cutis Laxa Family.

Once again we send our deepest sympathy to the family of Naomi, 4, gone too soon….……