10th February –
A first-of-its-kind event was held in Geneva (Switzerland), bringing together patients and international experts in the fields of public health, human rights, scientific research and the health industry to discuss why and how rare diseases should be part of the global health agenda.
Rare Disease International, first Worldwide Organisation representing Rare Disorders,
Eurordis, European Organisation of Rare Disorders,
and Blackswan Foundation, Swiss Foundation for Medical research,
made this day an exceptional moment, focusing on the necessary collaboration to promote rare diseases as a global public health and research priority, in line with the spirit of the United Nations of « leaving no one behind ».