List of doctors

A few years ago medical teams started looking closely at Cutis laxa, in France Centres of Reference dedicated to rare disorders were set up and research teams started working on undertanding the mechanisms of Cutis Laxa, its genetic origin / background and also therapeutic trails.

Thus today there are worldwide “expert” teams for Cutis Laxa.
Here are those we are in regular contact with (in alphabetic order of the countries):

Belgium

UZ Gent
Prof. Dr. Anne DE PAEPE,  Dr. B. CALLEWAERT, Dr. F. MALFAIT
Department of Pediatrics and medical genetics – De Pintelaan 185 – B-9000 Gent
Tel : +32 (0)9 332 36 02 – Fax:+32 (0)9 332 49 70
E-mails : anne.depaepe@ugent.be , bert.callewaert@ugent.be , fransiska.malfait@ugent.be

France

Centre de Référence des Maladies Génétiques  à Expression Cutanée
APHP – Hôpital Necker Enfants Malades

Pr  Christine BODEMER
Hôpital Necker – Service de Dermatologie – 149 rue de Sèvres – 75743 Paris Cédex 15
Tel :+33 144 494 337 –  Fax : +33 144 494 471
Email : christine.bodemer@nck.ap-hop-paris.fr

Pr  Smail HADJ-RABIA
Hôpital Necker – Service de Dermatologie – 149 rue de Sèvres – 75743 Paris Cédex 15
Tel : 00 33 144 494 337 –  Fax : 00 33 144 494 471
Email : smaïl.hadl@inserm.fr

United States

University of Pittsburgh
Dr Zsolt URBAN PhD, Associate Professor of Human Genetics
Graduate School of Public Health  – A218 Crabtree Hall – 130 DeSoto Street – PA 15261 – Pittsburgh
tel. : (412) 648 8269 – Fax : (412) 624 3020
Email : urbanz@pitt.edu          Website : www.hgen.pitt.edu/projects/cutislaxa

Tulane University Medical School
Dr Eva MORAVA MD PhD,
Professor, Pediatrics, Clinical biochemical geneticist,
Hayward Genetics Center , SL#31, 1430 Tulane Ave, New Orleans LA 70112,
tel. : +1 (504) 9885101 – Email : emoravakozicz@tulane.edu