Legal Information
IDENTITY
This website is under the total responsability of the association here below :
CUTIS LAXA INTERNATIONALE
138 Impasse de Champs Gervais, 74890 Bons en Chablais, France, Tel/Fax : 33 (0)4 56 30 74 43, e-mail : mcjlboiteux@aol.com
We are a voluntary, non-profit, Association under French Law of 1901.
Our statutes have been registered by La Prefecture of La Rochelle(France) under the number 0173004943, on 11th november 2001.
Published in the French Government Paper on 15th December 2001.
N°SIRET : 44251763700017
Nationally agreed by the French Department of Health in the order of 11th August 2006, published on 24th August 2006. Agreement renewed by the Decree of 11 August 2011 for a period of 5 years.
LEGAL DISCLAIMER
All material found at this site is for educational and informative purposes only. It is not intended to substitute medical or professional services nor replace the relationship that exists between patients, their physicians and other health car providers. No action, treatment, independent entities or persons are endorsed and all information is provided without warranty. Any questions should be referred to your physicians and in particular, any changes in treatment or care should be made in conjunction with your medical team.
CONTENTS EDITORIAL
The pages on this site are written and translated only by members of the board of the association.
All medical information and all contents relating to health are verified and validated by the Reference Center MAGEC (Rare Disorders with Cutaneous Expression at the Hospital Necker – Paris – France), unless specifically indicated on the relevant page.
The editorial director is Marie-Claude Boiteux, President of the Association.
CONFIDENTIALITY
Confidentiality of data relating to individual patients and visitors to a medical/health Web site, including their identity, is respected by this Web site. The Web site owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in France where the Web site and mirror sites are located. We undertake not to disclose personal data to any third party.
We guarantee to each and every patient or patient’s family full confidentiality for the data they give us. We will only pass on information to other patients/families or medical staff if the patients/families have given us their signed consent.
COPYING, REPRODUCING AND/OR ANY OTHER USE OF THE PHOTOS and/or DIAGRAMS OF THIS SITE IS STRICTLY FORBIDDEN
FUNDING
This website is hosted for free by ORPHANET (www.orpha.net).
Its conception, creation and updates are done by volunteers. Any eventual expense linked to creation and maintenance of the website are totally paid by the association (i.e. : software). We do not receive any specific grant for this website. We do not accept any advertising nor receive any funds from advertisements or trade.
Our sources of revenue are as follow :
– Membership fees and/or donations from private people ;
– Selling to a recyclor used inkjet and laser cartridges, and used cellphones we collect ;
– A few small grants from local public communities.
LINKS TO OTHER WEBSITES
This website contains addresses and direct links to websites of institutions, organisations, federations or associations linked to disability in general and rare, orphan and/or genetic conditions in particular. These links are for informative purposes only. We do not guarantee their content and do not hold any responsability of them.
UPDATES
The update is mentionned at the end of each page.
CONTACT
The contact email address is mentionned at the end of each page of this website.