EURORDIS Launched a new network of European members of the Parliament lobbying for Rare Disorders

On October 17th, Eurordis, a non-government alliance for patients suffering from Rare Disorders, launched in Brussels the new network of European members of the Parliament lobbying for Rare Disorders during the event “Juggling Care and Daily Life: The Balancing Act of the Rare Diseases Community”
This network gathers together European and National members of parliaments who advocate for improvements in the daily life of people living with a rare disorder. EURORDIS, together with this network, aims to lead on important actions, locally and internationally, to build political projects for current and future legislation, and to add rare disorders to all relevant public actions, at all levels.