Welcome

NEW CONTACTS, FAMILIES’ NEWS

Since last July, Mina (Irak), Aimee (USA), Gül (Turquie), Rhett (USA), Benjamin (USA), Linda (USA), Graça Maria (Brésil), Raghad (Syrie/Turquie), Françoise (France), Mara (Roumanie), Heather (USA) and Daniel (Italy) joined us.

That is now 385 patients spread over 59 countries across 5 continents, suffering from Cutis Laxa and members of Cutis Laxa Internationale.

Welcome to all of you, to our big Cutis Laxa Family.

Once again we send our deepest sympathy to the family of Naomi, 4, gone too soon….……

Welcome

NEW CONTACTS , FAMILIES’ NEWS

375 patients spread over 59 countries across 5 continents: this is the number of people suffering from Cutis Laxa who have joined Cutis Laxa Internationale as of today.

We are happy to welcome the brand new members : Elsie, Chiara, Enzo, Chris, Melissa T, Jon, Christian,  Edi,  Daniela, Roni, Jeanne, Eliisabeth, Melli,Jen, Markus, David and Laura’s brother.

Alas, the beginning of the year was sadly marked by three of our members passing away : Carmen, in Spain, Maraljingoo, in Mongolia and, Luisa, in the USA, left this world because of Cutis Laxa. Luisa and Maraljingoo were both only 4. Our emotion and sadness are always very strong in the face of such an unjust loss.

Once again we send their families our deepest and sincerest thoughts.

Welcome

We are happy to welcome the brand new members :

Laurie and Zachary, Charlotte, Addison, Andrei, Alexandra, Juan Camillo, Vihu, Junot Neto, David, Isabelle, Olliwier, Rhoda as well as Zara’s brother and sister,

A warm welcome to all of you in our big family.

355 patients spread over 55 countries across 5 continents, is the number of people suffering from Cutis Laxa who joined Cutis Laxa Internationale as of today.

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Welcome

Welcome to our Big Cutis Laxa Family

Welcome to Lynne, Mohammed, Parker, Tracey, Theo, Jessie K, Sharon B.K., Claire, Vitoria, Chris &Tiffany, Arabella, Marina Lydia, Sammuel, Sophie, Jaelynn, Pascaline, Abbigail’s little sister : Ellie, Gana, Jo and Ezra

Today, thanks to them, 340 patients from 54 countries across 5 continents, have joined Cutis Laxa Internationale.

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