Alabama Rare Diseases Advisory Council

Alabama Rare Diseases Advisory Council held its first meeting

The Alabama Rare Diseases Advisory Council, headquartered at the University of Alabama at Birmingham School of Medicine, aims to advise the governor and legislature on research, diagnosis, treatment and education regarding rare diseases. Its duties include collecting data on rare diseases and coordinating diseases collaborations between stakeholder organisations. The collaboration between legislators and rare disease advocates of the state worked to create the Alabama Rare Diseases Advisory Council in the hopes that the state would take a leadership position and provide policies that will benefit the residents of the state affected by rare diseases.

(© Orphanews 2018.10.10)